Sarah Kelly's Fundraising Page
Diana Kelly is raising money for Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
- Fundraising page goal: $1,000.00
- Total donations to date: $1,925.00
- Total contributions: 36
Thank you so very much for visiting this fundraising page for my daughter, Sarah Katherine Kelly!!
As most of you know, Sarah was diagnosed with RSD (reflex sympathetic dystrophy) in November of 2005. She was only 11 years old. It has been a long and tough 2 1/2 years. The disease started in her left foot and quickly traveled up her entire left leg. The process then "jumped" to her right leg and now has moved into both hands and arms, her shoulders, neck, and back. Sarah also suffers from frequent and painful headaches, has very difficult time sleeping, and has to receive some homebound schooling. Now, at the age of 14, doctors document her case as "whole body RSD."
Despite all the pain, Sarah has shown the courage and strength that most individuals don't exhibit their entire lives. She has received multiple infusions in her spine, paralyzing her legs and arms. She has undergone local anesthetic blocks, hundreds of needle sticks and blood draws, takes many medications several times each day, has received months of grueling physical therapy, outpatient infusions, and in January 2008, received a spinal cord stimulator with 16 electrodes up and down her spine. She has had to use a wheelchair, walker, crutches, and even crawled to get up the stairs.
RSD is a difficult and debilitating disease, but our Sarah endures and looks to the future with hope and the will to beat RSD. Sarah once wrote "because you cannot see the disease, a recurring scenario tends to be people not believing something is wrong with you and that you are not telling the truth. But, just because you don't see it doesn't mean it isn't there." And despite these struggles and battles, Sarah goes on and doesn't look back.
Sarah, her sister, Maegan, and myself are going to attend the June 22nd Achilles Walk for Hope & Possibility in Central Park and walk with Team RSDSA to support funding and research for RSD. We look forward to meeting others with this disease, learn from their experiences, and help make Sarah's life better and brighter. We invite and even challenge each of
Digg this action
Post on Facebook
